Wednesday, February 8, 2017

"Life Support"

Fueling Life: Support


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"Support"


Is a verb, it requires ACTION!

What action have the supporters in your feeding tube journey done?
Ours have been amazing, and I hope your's have as well.
They are the unsung hero's of our son's medical adventures,
The ones there in the middle of the night, wee hours of the morning for surgery, 
joining us in all the help we need whether it be:
  • Financial
  • Spiritual
  • Emotional
  • Physical
They have allowed us to endure bravely the things required of us.
 Like watching and waiting for our son to come out of yet another invasive procedure.
Like my Dad 
Who drove 2 hours to get there the morning of Nico's G-tube/Fundo. 
Because he knew we needed him, It makes me cry remembering exactly how much we needed him.
Or my Mom
Who has been there to hug me, call me, challenge me when I was about to lose faith in myself, the doctors, and God. 
Like my Sisters,
One who is willing to take on our older children at a moments notice and we know they will have the time of their life playing with cousins and not worry and wait in a hospital.
The other who took on a challenge and agreed to help me with a crazy book idea,
and did a wonderful job that I won't ever be able to fully pay her back for.
and has been a listening ear since distance makes physical help limiting.
My friend Mary,
Who has allowed me to vent and has taken the most amazing photos of this journey,
and deserves so much recognition.
To the friends and family,
 who promote our book and feeding tube awareness, even when they may be overwhelmed with the topic.
Friends and Family like:
  • Nana and Papa
  • Becky and Cy
  • Aunt Eva
  • Pat and Gloria
  • Linda 
  • Jesse Butler/Publisher
  • Tabitha
  • Alyssa Flores/Reporter
  • Jc Penneys Salon Team
  • Mt. Youth homes staff
  • Lori
  • April and Tyler
  • And many more...

It's allowed us to get to where we are with book sales, news segments, and reviews.

These supporters have served as a foundation to prop us up when we were at our lowest or felt defeated by what our son's future may look like.
You all continue to give us the courage to keep looking for answers for Nico.
You are invaluable and we love you all.

How can you support a Tubie Family?
If you know one here is how:
  • Learn to use the equipment
  • Call them to see how they are doing
  • Visit them if possible while in Hospital
  • Take their other children, or if you know how to use the equipment then take all
  • invite them to your home
  • be supportive of raising feeding tube awareness
  • Pray, chant, send good vibes whatever your spiritual good will is then focus it on them once in a while.
Even the smallest things are greatly appreciated and make more of an impact on long term health and success than you could know.
We can't and shouldn't do this journey alone.

Thank You For Your Support!




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